Improving the lives of people with
Primary Immune Deficiency
NHS Blood Donor and Transplant Campaign
UKPIPS is delighted to support the NHS Blood and Transplant Campaign to increase the number of plasma donors in the UK. Some of the UKPIPS Community members have told their stories to the media. You can see and read them by following the links below. Please watch Simone Simon’s two videos here and here, and… Continue Reading
JOIN THE DONOR POOL
On 21st July, NHS Blood and Transplant launched a campaign encouraging those who can to donate plasma for medicines which includes our immunoglobulin replacement therapy. Donation restarted in April after a gap of more than 20 years. There are currently only 8,627 active plasma donors in the network and NHSBT is appealing for another 14,500… Continue Reading
Immunoglobulin Shortages
UKPIPS News for patients on IRT Due to a drop in plasma donations (because of the Covid pandemic) together with an increasing demand for immunoglobulin (year on year), there is a current shortage of some products that is likely to affect us in the UK. UKPIPS has direct reassurance from the NHS that Primary and… Continue Reading
First blood plasma for medicines donations begins
NHS Blood and Transplant (NHSBT) announce “First blood plasma for medicines donations begins” People will today (Wednesday April 7) donate blood plasma for medicines for the first time in more than 20 years. The plasma will be fractionated and used to make antibody-based medicines – called immunoglobulins – for people with rare immune diseases. NHS… Continue Reading
4 NATIONS AGREEMENT ON LIFTING THE UK PLASMA BAN
UKPIPS TRUSTEE STATEMENT – ANNOUNCING THE 4 NATIONS AGREEMENT ON LIFTING THE UK PLASMA BAN UKPIPS is absolutely delighted to announce that the ban on UK plasma being used for the manufacture of immunoglobulins has finally been lifted, after concerted campaigning over the two years. By lifting the ban (which has been in place… Continue Reading
UK Rare Diseases Framework
The Department of Health and Social Care published the new UK Rare Diseases Framework on 9th January 2021. The Framework is aimed at raising awareness of rare diseases, speeding up diagnosis and improving care and treatment. It sets out four key priorities for rare diseases in the UK over the next five years, covering: Helping patients… Continue Reading