Improving the lives of people with

Primary Immune Deficiency


We are UKPIPS, the Primary Immune-deficiency Patient Support Charity.

We’re here to make sure that anyone with a Primary Immune Deficiency (PID) or a Primary Antibody Deficiency (PAD), their carers and friends, has somewhere to turn to for advice and support.

Our website gives information on the charity and on PID and PAD and their treatments that can be understood by all.

We have informative factsheets covering a variety of subjects that can be viewed  here.

We promise to respect any personal information that we hold and to keep it safe – our Privacy Statement can be viewed  here.

Our site uses cookies. You can view our cookie policy here.

Call for Volunteers and potential Trustees

UKPIPS has been through some trustee changes this year. With Margaret Fuller having retired from the charity, after many years of support as both a trustee and volunteer and with Paul Harries and Erald Kuniqi standing down, we now have a completely new management team comprising David Cohen, Sue Dimmock and Gary Narborough.  Sue and… Continue Reading


This is to let you know that if you live in England, from 6th November you will no longer be able to order or receive lateral flow devices by going online or through calling 119. NHSE released the following statement on 31st October: How to get hold of COVID tests If you’re eligible for COVID-19… Continue Reading

Pat McDonald and her Sainsbury’s superstars

UKPIPS would like to send a very big thank you to Pat McDonald and her Sainsbury’s Veterans friends who raised £120 for UKPIPS on 1st August by holding a raffle, bring and buy, tea and cakes morning. As a charity we rely on donations, so fundraising efforts like this are a great help in keeping… Continue Reading

UKPIPS July 2023 Newsletter

Hello to you all, and welcome to the second newsletter from UKPIPS for this year.  We hope that you will enjoy it and respond. We will be sending newsletter links to those members who have allowed us to record their email address, and also to our closed Facebook Group. The Newsletter can be read here… Continue Reading

Blood Plasma Donations

A member of the UKPIPS Community, Leanne Preedy, has been interviewed by the Daily Mail. She speaks about the need for immunoglobulin infusions for herself and her daughters. All three have CVID. The article also highlights the supply issues surrounding the infusions and the need for plasma donations. You can read the article on page… Continue Reading

UKPIPS FUNDRAISER (30th June to 2nd July, in Swavesey, Cambridge)

Will you be in the Cambridge area between Friday 30th June and Sunday 2nd July? If so, why not head over to the White Horse Inn in Swavesey where you will find another fun-filled weekend of pinball fundraising for UKPIPS? UKPIPS is very grateful to Jodie and Joe for all their ongoing support to the charity.  … Continue Reading

UKPIPS is grateful for the support of Takeda

UKPIPS is a Registered Charity in England, Scotland and Wales – Charity Numbers 1148789 and SCO44636                                        UKPIPS is a Company Limited by Guarantee Number 7957558