Improving the lives of people with

Primary Immune Deficiency


We are UKPIPS, the Primary Immune-deficiency Patient Support Charity.

We’re here to make sure that anyone with a Primary Immune Deficiency (PID) or a Primary Antibody Deficiency (PAD), their carers and friends, has somewhere to turn to for advice and support.

Our website gives information on the charity and on PID and PAD and their treatments that can be understood by all.

We have informative factsheets covering a variety of subjects that can be viewed  here.

We promise to respect any personal information that we hold and to keep it safe – our Privacy Statement can be viewed  here.

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Learning To Live With Covid When You’re Immunodeficient

On 26th April 2022, Lynda Rhodes and Sue Dimmock took part in a series of UK radio interviews to coincide with World PID Week 2022.  The topic this year was Learning To Live With Covid When You’re Immunodeficient, and this covered a variety of topics including #   how the removal of all Covid restrictions is… Continue Reading

Second Anniversary of COVID

UKPIPS is supporting National Voices in their shared statement on the second anniversary of UK Covid lockdown. We take this time to remember everyone who lost someone during the pandemic and anyone who’s health has suffered through the pandemic. Read our shared statement here: Continue Reading

It’s not Freedom Day but Forgotten Day for some

Following the PM’s announcement on removal of Plan B Restrictions and self-isolation, UKPIPS is asking the Government to establish a clear path to Covid preventative treatment for those who have an immune deficiency,  and who feel  “isolated”,  “forgotten” and “discriminated against”. These adults and children have not been able to live a ‘normal’ life for 2… Continue Reading

UKPIPS Writes to the Secretary of State for Health and Social Care

The UKPIPS Community is concerned about the significant impact of removing Plan B restrictions for people living with an immune deficiency. The attached letter was sent to the Secretary of State on 29th January 2022.  In a follow up email on 14th February, Sue Dimmock on behalf of UKPIPS asked  “What is the Government actively… Continue Reading


On February 28th it is Rare Disease Day – across the world there are over 300 million people with rare diseases, including CVID and other PIDs. Rare Disease Day is the official international awareness-raising campaign for rare diseases. Its objective is to raise awareness amongst the general public and decision-makers about rare diseases and their… Continue Reading

COVID 19 Guidance at January 2022

The latest advice for people who are immunocompromised can be found on the website here   Continue Reading

UKPIPS is a Registered Charity in England, Scotland and Wales – Charity Numbers 1148789 and SCO44636                                        UKPIPS is a Company Limited by Guarantee Number 7957558