Improving the lives of people with

Primary Immune Deficiency

Who We Are

UKPIPS is a charity run by people with a primary immune deficiency (PID) or a primary antibody deficiency (PAD), their carers, family and friends.

We aim to provide others with a PID or a PAD, their carers, family and friends with a place to find help and information in the form of  factsheets for your help.

We provide a network to others on Twitter,   YouTube  and  Facebook,  run events where you can meet others and share information, provide an advocacy service and  factsheets about the conditions which are written in a way that we hope is easy to understand.


UKPIPS is run by volunteers and supported by a part-time (employed) administrator. It is governed by the trustees, who meet frequently to provide guidance to the administrator and volunteers who carry out the work of the charity.

At present there are four trustees: Margaret Fuller (Chair), Sue Dimmock, David Cohen and Gary Narborough. They bring a wide experience to the charity as patients and family members, and in their professional lives. Trustees serve for three years and often have been volunteers with UKPIPS before taking on a role as trustee. You can find out more about the role of trustees from the UKPIPS Articles of Association here

Click  here  for the UKPIPS Organisational Structure


Amended 13/06/2023 to update trustees details
Amended 18/11/2022 to add Trustee details

UKPIPS is grateful for the support of Takeda