Improving the lives of people with

Primary Immune Deficiency

Getting Involved

Get Involved

UKPIPS is a volunteer led organisation. We welcome people with a PID or a PAD, their families and friends to get involved. You can do this in many ways. Here are some suggestions:

Become a volunteer

We’re looking for volunteers who have skills in areas like:

  • Benefits and DWP
  • PIPS
  • NHS (4 nations)
  • pharmaceuticals
  • HR; marketing
  • fund-raising
  • social media support
  • business planning
  • business administration
  • company law
  • consultation

… the list goes on but we’d love to hear from you if you have other skills and suggestions too.

Volunteer roles can be adapted to suit whatever time you can offer. Please click  Contact Us  to get in touch.



As a charity we depend on donations and fund-raising to enable us to work for you – this new website was made possible through the kind donations in the memory of Rosalind Sawyer.

If you can, please donate to our funds. Please click  Donate   for ways to do this. You can see how we spend the money by looking at our  Annual Report .

We would also love to hear from you if you can organise any fund-raising activities, as these bring people together and are usually great fun as well as raising money for our work. Please click  Contact Us  to send us an suggestions via email.


Online Shopping

You can now donate to UKPIPS when you are doing your online shopping.

You can do this at  Amazon via their  Smile  site and also through  Give as you live,  which allows you to give via many other online shops.

Please sign up and select UKPIPS as your charity. It’s amazing how the pennies add up.  Thank you.

UKPIPS is grateful for the support of Takeda