Improving the lives of people with

Primary Immune Deficiency

UK Rare Diseases Framework

The Department of Health and Social Care published the new UK Rare Diseases Framework  on 9th January 2021.

The Framework is aimed at raising awareness of rare diseases, speeding up diagnosis and improving care and treatment.

It sets out four key priorities for rare diseases in the UK over the next five years, covering:

  • Helping patients to get a final diagnosis faster
  • Increasing awareness of rare diseases among healthcare professionals
  • Better coordination of care
  • Improving access to specialist care, treatments and drugs

You can read the document here.

Published 9th February 2021

Amended 18th February 2022 (Old News)

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