As many already know, UKPIPS gained charity status for Scotland in February 2014.
Equally, our profound thanks to all the staff at the main Scottish immunology centres for promoting our Scottish Patient & Carer event on 7th-8th June, we had an excellent response from patients who wanted to travel to the Stirling Management Centre at Stirling University to see how we planned to run what the patients themselves now refer to as ‘Scot PIPS’.
Our programme ran along similar lines to the event we ran at Farncombe in Gloucestershire at the end of November 2013 – but with some of those attending most kindly “raising their hands” to volunteer taking on some key roles in developing this new entity north of the border – and regardless of what happens when Scotland votes for devolution – or not – come this September.
Apart from all those arriving to attend the event, UKPIPS was also delighted to welcome two guest Speakers to our meeting on 7th June. Our particular thanks go to Vicky Price, a Clinical Nurse Specialist from Yorkhill Hospital Glasgow who spoke to us about the work undertaken by S.P.A.I.I.N. (Scottish Paediatric and Adolescent Infection and Immunology Network). Our sincere thanks as well to Natalie Frankish from Genetic Alliance UK, based in Edinburgh. Both these organisations expressed their interest in UKPIPS (or should we say ‘Scot PIPS’?) and commented they would be pleased to assist us in developing our Scottish affiliate in terms of patient and carer support. We were particularly happy to have them with us as they freely and kindly gave up one day of their respective weekends in our support. Generosity indeed – and thank you Natalie and Vicky.
Sadly, some delegates attending could only do so for one day but with everyone’s support, we managed to accomplish a complete and extensive programme without running out of allotted time on the Saturday or Sunday programme.
We’ve a feeling that as our new ‘recruits’ slowly find their feet in terms of what they feel needs to be done in Scotland, we’re going to be back with you quite soon. Well done guys – and good luck. You’re all assured of our help and support as Scot PIPS goes forwards.