There have been some changes to the immunoglobulin products available for patients living in England. This leaflet will explain what these are and how these may affect you. Do not hesitate to contact your Clinical Immunology Team or UKPIPS...
At UKPIPS we do not charge our community members for the services we offer because we know that many people suffer financially because of the impact of their Primary Immune Deficiency. However, we do encourage you all to support...
Sunday 17th April was a lovely spring day which saw more than 200 runners turn up at Birmingham’s Cannon Hill Park to take part in the first Birmingham Zebra Run. Entrants included children as young as four years, to...
Rare Disease UK have had a number of media requests in the run up to Rare Disease Day and are looking for a number of patient case studies for the following: The Sun Scottish Daily Record BBC Radio Northampton The...
Please see the invitation below which we feel may be of interest to you. If you wish to receive more information about the work of the Public, Patient Voice and Information teams you can subscribe to our Newsletter here:...
As we approach the third anniversary of our formation, UKPIPS, with the support of Grifols – a leading pharmaceutical company, are pleased to announce that the second edition of our website is now live. Within the next few weeks we will announce details...
My name is Joshua O’Neil and I was diagnosed with Common Variable Immune Deficiency (CVID) in February 2006 at the age of fourteen. Finding out that you have a life altering immune deficiency is scary at any age especially...
Over the weekends of 30 Nov-1 Dec at the UKPIPS Conference in the Cotswolds and 6-7 Dec at the UKPIN Conference in Liverpool, UKPIPS launched its unique ‘Z’ Card for all patients with a PAD or PID. This fantastic...
Tonight (10th Dec) a small group of madrigal singers called “Musyck Anon” and based in Evesham (UKPIPS home town) spent an hour in the whistling cold of a Tesco porch singing carols, as busy shoppers rushed in and out....
UKPIPS is holding a Patient Weekend over Nov 30 – Dec 1 at Farncombe Estate in the Cotswolds. This means that any patient in the UK who is part of the UKPIPS community is welcome to attend and we...
