We understand that caring for someone with a Primary Immune Deficiency (PID) or a Primary Antibody Deficiency (PAD) is not always easy. That’s why we have put together this special section on the UKPIPS website just for carers.
It’s still a work in progress, but our intention is to grow this into a resource where carers can come to view publicly available and closed carer specific information. Click here to see what resources we’ve been able to upload so far.
If you have any ideas for this section, a topic that we’ve not yet covered or would be interested in writing about your experiences – feel free to let us know.
In addition to this we’d like to setup a closed Carer Facebook group – as sometimes it helps to speak with others in a similar situation, get advice and generally get some support. If you’d be interested in helping us with this we’d be delighted to hear from you.